Thursday, November 20, 2008

The woes of Kalli

So some of you have made inquiries as to what problems we have had with Kalli from the last post. Now that we know exactly what is happening we will share it with all of you. At Kalli's 2 week appointment the pediatrician had concerns about Kalli's head. She thought that her plates in her head were already fusing which would be really bad. She wanted to send us to get x-rays to check it out. When she checked with our normal pediatrician she was told to hold off a week just in case they are funky because of birth. We waited a week and went back in to see our normal pediatrician. She thought they were also fusing so told us to go in the next week to get x-rays. 
The next week we went in and waited 3 hours to get 20 minutes worth of x-rays. We then proceeded to wait for the doctor to call us back. A week later she called and said that they are fusing, therefore we would need to see a neurosurgeon to get checked out. She told me surgery would be the drastic way, she didn't think Kalli would need surgery. 
After doing some research and finding other's who's children also had this, we pretty much knew she would need surgery. I made an appointment with the neurosurgeon and we proceeded to wait until our appointment which is torture, let me tell you. 
Today was her appointment and the first thing the doctor does when he comes in the room is tell us she definitely has it. By having it he means sagittal synostosis, which means that her plates are fusing too early. He will have to make an incision in the front of her head and the back and go in endoscopically to remove some of her skull. They will be taking a Y shaped amount of skull out from the front of her head to the back. She will then have to wear a little helmet thing to help reshape her head for 6 months. Kalli will be in the hospital for 2-3 days and in the ICU for the first day. Unfortunately they expect her to loose quite a bit of blood so she will need a transfusion during surgery. 
We expect to have the surgery done in the next two weeks, we're just waiting to get scheduled. I can't think about it too much or I will start to cry. Joe decided to stay home from work today and we hung out with his mom because I knew I just couldn't be alone today. 
We will keep you all up to date on her surgery, but we wanted to let you in on what is going on with her. She'll need all your thoughts and prayers for the next couple of weeks. 
P.S. I decided to go on a business trip with Joe, so we will be in Albuquerque, NM for the next 5 days, getting back just in time to cook Thanksgiving dinner. 

15 comments:

Amy said...

I had no idea! My heart goes out to you. Kalli will definitely be in our prayers. She is so precious. I'm glad you were able to be with Joe and mom today. We love you guys.

Kerstin said...

Wow that is so scary. I will keep you guys in my prayers and pray that the surgery goes perfectly. She is beautiful, by the way, I love the little dress she is wearing in that last picture.

Kelly Shoroye said...

Your family will definetly be in our thoughts and prayers. She is a beautiful little angel

The CEO said...

We will DEFINITELY be thinking of you and sending prayers your way. We love you and your sweet kiddos!

Summer and Hunter said...

Kristen,

You can rest assured you and Kalli are in our prayers.

Lewieville said...

you are totally in our prayers! I am sure everything will work out, at least it is something that they know what to do and how to treat. good luck and keep us posted. let us know what else we can do.

Angie said...

Oh my gosh, Kristen! I cried reading your post. We wish you the best and pray that everything works out alright.

David and Sammy said...

Kristen, it's Sammy. I don't know if you caught our blog but that is EXACTLY what Ashton had saggittal craniosynostosis. I'm sorry you're having to go through this but it'll be over soon. We had a different surgery done but if you want to cry and talk about it with me I would LOVE to talk to you. My email is Samanthalei@hotmail.com
hope to hear from you when you're back in town.

thegatewoodfamily said...

Kristen first I want to say how sorry I am that you have to go through this, I know how scary it is to have your little baby go through surgery, but just know that the Lord's hands will be with the surgeon and everything will come out in the end. The 1st 6 months of Bindi's life was drs here and there and every where and we are just starting to come down from it all. Kalli will be in our thoughts and prayers as well as you and your husband, you two will become stronger through this trial.

Jenny and Kevin said...

We are so sorry that you have to go through this with Kalli. She is such a little cutie and we are keeping all of you in our prayers. Let us know if we can do anything else to help. On a side note- I went to the library and checked out 3 books that you liked and am now enjoying them immensely.

Aubrey Norby said...

Joe and Kristen, We are sorry to hear about Kalli's condition and realize that this may be harder on you than on her. Thank goodness it is something that can be treated. As you have probably heard, my brother's son had a similar condition, only his were fusing in the front of his head. It will be a tough time during the surgery and recovery, but I am confident that all will go well and she will be as good as new afterwards. You will definately all be in our prayers and thoughts. Let us know when you have a date for the surgery. We love you!

Karrasch Clique said...

Kristen,
I don't think that I have anything to say that hasn't already been said. I wish that we lived near you so I could help you guys out. But I know you too are strong and it will all be over soon! Kiss that baby kalli for me and know that we love you!

deniz said...

Hi Kristen, I was so shocked when I read your posts. I hadn't been able to read your blog for awhile, and I am at a loss of words right now. My thoughts and prayers are with you, Kalli and your entire family. Thankfully her condition was found early...

Marshall said...

We will certainly keep her in our prayers, and you and Joe and Blake as well! I am sorry you have to go through this!

Jensen Family said...

I really want to bite her...in a good way! She is adorable! I really wish I could be there when she has her surgery...I don't know why because it's not like I could help... but I could do the dishes!