The woes of Kalli

So some of you have made inquiries as to what problems we have had with Kalli from the last post. Now that we know exactly what is happening we will share it with all of you. At Kalli's 2 week appointment the pediatrician had concerns about Kalli's head. She thought that her plates in her head were already fusing which would be really bad. She wanted to send us to get x-rays to check it out. When she checked with our normal pediatrician she was told to hold off a week just in case they are funky because of birth. We waited a week and went back in to see our normal pediatrician. She thought they were also fusing so told us to go in the next week to get x-rays. 

The next week we went in and waited 3 hours to get 20 minutes worth of x-rays. We then proceeded to wait for the doctor to call us back. A week later she called and said that they are fusing, therefore we would need to see a neurosurgeon to get checked out. She told me surgery would be the drastic way, she didn't think Kalli would need surgery. 

After doing some research and finding other's who's children also had this, we pretty much knew she would need surgery. I made an appointment with the neurosurgeon and we proceeded to wait until our appointment which is torture, let me tell you. 

Today was her appointment and the first thing the doctor does when he comes in the room is tell us she definitely has it. By having it he means sagittal synostosis, which means that her plates are fusing too early. He will have to make an incision in the front of her head and the back and go in endoscopically to remove some of her skull. They will be taking a Y shaped amount of skull out from the front of her head to the back. She will then have to wear a little helmet thing to help reshape her head for 6 months. Kalli will be in the hospital for 2-3 days and in the ICU for the first day. Unfortunately they expect her to loose quite a bit of blood so she will need a transfusion during surgery. 

We expect to have the surgery done in the next two weeks, we're just waiting to get scheduled. I can't think about it too much or I will start to cry. Joe decided to stay home from work today and we hung out with his mom because I knew I just couldn't be alone today. 

We will keep you all up to date on her surgery, but we wanted to let you in on what is going on with her. She'll need all your thoughts and prayers for the next couple of weeks. 

P.S. I decided to go on a business trip with Joe, so we will be in Albuquerque, NM for the next 5 days, getting back just in time to cook Thanksgiving dinner.